Home healthcare requires adaptability, writes columnist Ari Anderson, who has relied on home health nurses for decades.

Most children SMA type 1 can survive an episode of pARDS, a life-threatening respiratory failure, under standard protocols, ...

When columnist Connie Chandler tackles an art project, it becomes a creative collaboration thanks to her supportive team of ...

SMA patients may have subtle abnormalities in eye movements, likely caused by changes in the brain rather than muscle ...

The change of seasons brings colder weather, meaning columnist Connie Chandler must seek to adapt to her changing physical ...

Being a wheelchair user has its drawbacks, says columnist Kevin Schaefer, but he's also found many benefits to having a ...

Columnist Helen Baldwin describes how Halloween lost its mojo for her after her baby boy was diagnosed with SMA in 1997.

Helping certain genetic information travel to specific parts of nerve cells can ease motor symptoms in SMA, a study in mice ...

One night, I was woken by a beeping noise. That’s not altogether unusual, because alarms from my medical equipment occasionally sound throughout the night. I’m so accustomed to it that my mind ...

For columnist Alyssa Silva, slowing down during the winter months isn't always easy, but it's necessary to protect her health.

Adaptations that provide a balance between adventurous play and protective design for children with SMA include: Adaptive swings: Swings with high backs, secure harnesses, or molded bucket seats give ...